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35 sue haskins
suehaskins@blueyonder.co.uk
Location: bristol
IP: 77.102.243.22
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 Monday 02/06/2012 15:45:43 CST   |
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Until the age of 29,I was fit, well and healthy. At 29,i went on holiday to the seaside. There, iate some seafood and became unwell, yellow and developed a rash. i visited her GP, who thought i had eczema and prescribed me some cream.
Two weeks later,I went back to see my GP because i had not improved in any way. I later saw a locum doctor, who told me i had liver failure.
At hospital, I was also told that i had only months to live. Tests showed that i got hepatitis A and B. Hepatitis occurs when there is inflammation (swelling) of the liver, often caused by a virus. She was transferred to a specialist hospital and assessed for a liver transplant. Sue said she was given very little information about liver transplants at that time. i became increasingly ill and was soon too weak to walk. I had her first liver transplant in 1995, aged 29.
After surgery, the new liver started rejecting and i was given medication to stop the rejection. i spent eight months in hospital. When i was well enough to be discharged, i bought a computer and learnt more about liver transplants on the internet. and i started to make cards and sell them giving the money to the Liver Unit,
A month after being discharged, i caught a virus and went back into hospital for another two months. There, she met someone who told her about the Transplant Games. I applied to take part and, in 1996, won four medals.
Since her transplant, ie has been back to hospital several times for different problems, including pneumonia and lung disease. In 2005,my liver started rejecting and this was a difficult and depressing time. i felt that, this time, i was unlikely to survive and had some counselling to help me through her depression.
In 2006,i was admitted into hospital again and assessed for a second liver transplant. I was placed on the transplant waiting list and told that, without a transplant, i could have only three months to live. During this time, i became increasingly weak, yellow and found it hard to eat.
In August 2006, I had my second liver transplant and, three weeks later, i discharged from hospital. i recovered well but, in 2008, developed pleurisy of the lung, for which i had surgery. Pleurisy is inflammation of the pleura, the double-layered membrane (covering) that surrounds the lungs.
my first donor was a 42-year-old male who died of a brain tumour. my second donor was a woman who had died in a road traffic accident. I wrote to both the donor families and contacts them annually around Christmas. I AM very grateful to them and said that, without the transplants, i would not be alive today.
i wondered how i had got liver disease in the first place as i had never drunk alcohol. I felt that her lungs were no longer as strong as before and that my kidney function had been affected by the anti-rejection medications. However, i urged people to get on with life and enjoy it as much as possible, as i do myself.
can you let me know if any liver tranplantee are on aspin to thin the blood please,, |
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34 Lynn
liversupport@blueyonder.co.uk
Location: Wales
IP: 80.42.165.121
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| Sunday 01/29/2012 13:58:19 CST |
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Hi Alan
I was on your forum as balloo waited nearly 2yrs (22months actually) on the first of january 2012 a phone call came from one of the liver coordenators wishing me a happy new year and she said "you have been waiting a while" to wich i replied "yes" and then she said can you make your way to the hospital now as we may have a liver for you" Wow what a phone call that was even tho i had been waiting for it. So off we went and on the 2nd jan 2012 i had a new liver and the doctors where happy with my progress and i was discharged 11days later. hat I was told but never took much notice of was the emotions people said i would have and boy o boy am i having them every time i think about my donor and his family i cry i just cant help myself. I really want to write to my donors family but what do you say to someone who is grieving a loss of someone. They have lost and i have gained but i really need them to know that their gift to me under extreme circumstances was greatfully recieved without seeming to gloatand without it coming out the wrong way which i do do quite a lot i must be a master of putting foot in it syndrom. anyway what i would like to offer anyone who needs a chat to contact me and i will try and talk and help out whenever i can.
For contact details please get in touch with Alan (webmaster) on liversupport@blueyonder.co.uk
Lynn
Ex balloo in forums |
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33 Richard
rickcooke3@aol.com
Location: South Yorkshire
IP: 86.153.85.9
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| Saturday 12/03/2011 09:38:49 CST |
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Hi Alan,
Thank you for sharing your experience. It appears we are both of a similar age. I am currently on the QEH Birmingham list for Liver transplantation, so like you were, waiting for the call.
Ill let you know how things go.
Best wishes,
Richard |
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32 jamie
jamiehauxwell@yahoo.co.uk
Location: uk
IP: 94.1.221.47
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| Tuesday 07/19/2011 13:38:43 CDT |
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| hi i stumbled across this site while looking for info on people emmigrating after a transplant if anyone has any info or advice on this would be nice to hear from you. i had a liver transplant in 92 when i was 14 was born with carolis syndrome i had my liver transplant at birmingham childrens hospital excellent doctors and staff i now go to freemans for my check ups and see dr hudson this is also a excellent team i havent really had many problems few slight rejection but medication got changed and was fine hope this bit of info helps and encourages people waiting for transplants or have just had them any questions please ask |
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31 Lisa Golding
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| Thursday 12/02/2010 19:00:48 CST |
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Fri 30 Jul 2010 20:39:34 BST
Subject: Living life to the full
I had my liver transplant 17 years ago when I was 3 years old. I was part of the Birmingham Childrens Hospital and have now just moved over to the QEH. I have never had any issues with rejection and have recently been told I would be a good candidate for tolerance i.e. slowly come off my medication although I think this would be many years down the line if ever. I was given 1 week to live and was put on the top of the UK emergency transplant list. Just goes to show that everyone can live a full life after transplantation. Its websites like this that help people through the process! :) |
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30 Flanneryged
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| Thursday 12/02/2010 18:59:42 CST |
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Tue 04 May 2010 13:10:09 BST
Subject: Waiting for a Transplant.
Hello there my name is Ged.I am currently waiting for Transplant surgery at the Freeman Hospital.I am very glad to know there are survivors out there willing to share their knowledge.I must admit I
am having a tough time with things,the side effects of my malfunctioning Liver are now getting more and more apparent.I have
chronic Constipation,I take Lactulose to help me out.Also my memory
is not at all what it used to be.I find I can no longer be expected
to assimilate information as I just forget most of what I have just learned.Also the depression gets me down and the sleeplessness and the constant Tiredness.I am sorry to go on but I have no-one to relate to.Anyway I am glad I have found this site,thanks for starting it.Regards *GED* |
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29 Michael Burt
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| Thursday 12/02/2010 18:58:01 CST |
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Sat 27 Mar 2010 15:55:40 GMT
Subject: liver transplant
An extremely interesting website which has answered many of our questions. My wife will shortly be attending Kings College Hospital for her final transplant assessment. She has autoimmune hepatitis which has extensively scarred her liver where a transplant is her only option.She has been very well looked after by Drs Mitchell, Cramp and Cross at Derriford Hospital Plymouth whom we have nothing but praise. |
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28 Sian Hayden
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| Thursday 12/02/2010 18:56:33 CST |
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Wed 02 Dec 2009 19:53:12 GMT
hi alan! i had a liver transplant oct 2005.I went in2 QE hospital not knowing what was wrong with me i just know i was very ill.everything in my body was shuting down and the doctors told me i needed a liver transplant i was only there 3 weeks i was just so ill.I was very lucky that i didnt need to wait to long.after i had the transplant they told me i had pbc.Im feeling alot better now i take my tablets to keep everything under control.I would love to hear from people with pbc. |
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27 Wayne Whiskerd
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| Thursday 12/02/2010 18:55:05 CST |
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Thanks Alan, I had a liver transplant in Feb of this year. I concur with all you say. I wish I had known about this before hand. The one thing to say is there is life after and it can be wonderful. 21.11.2008
15:08 h |
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26 Abijann
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| Thursday 12/02/2010 18:53:48 CST |
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I would like to invite you to a group of people who have cirrhosis of the liver...your site would be a great help to those there:
http://health.groups.yahoo.com/group/livercirrhosissupport/ 21.11.2008
4:46 h |
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25 Michaela Weston
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| Thursday 12/02/2010 18:39:40 CST |
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Sun 29 Mar 2009 13:50:16 BST
Hi, I wrote to you in may 2007 just 14 days after my liver transplant, and i thought i would just let you alan and everybody else know that after 9 months things are great, the staff at Birmingham are truly amazing. i can only thank the donor for the greatest ever gift they could have given, life. I still don't know what happened to make my liver stop working and probably never will,but i just want to tell people who have any doubts about a transplant-it isn't easy but after a few weeks and now months it is DEFINATELY WORTH IT, god bless to all involved, Michaela xx 20.1.2008
18:51 h |
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24 Michael E
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| Thursday 12/02/2010 18:37:11 CST |
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Sun 29 Mar 2009 14:10:03 BST
Thanks for your website, my wife has had a liver transplant years ago and is now having to have a second one due to scarring, i'm so scared cause i never thought this would happen a second time, I thank you for all the info, take care and God bless you 12.11.2008
20:18 h |
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23 Dalia
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| Thursday 12/02/2010 18:36:01 CST |
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Sun 29 Mar 2009 14:01:56 BST
I had a liver transplant at Addenbrookes Hospital Cambridge 22 years ago. I stop taking anti rejection drugs 17 years ago. 19.8.2008
17:38 h |
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22 Ian Ashmore
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| Thursday 12/02/2010 18:34:45 CST |
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Sun 29 Mar 2009 14:01:56 BST
I had a liver transplant at Addenbrookes Hospital Cambridge 22 years ago. I stop taking anti rejection drugs 17 years ago. 19.8.2008
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21 John Parkes
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| Thursday 12/02/2010 18:33:27 CST |
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Sun 29 Mar 2009 13:59:32 BST
I was being treated for autosomal recessive haemochromatosis since march 2004.prior to which I had been diagnosed as diabetic which I managed via dietry control until Nov.2006,from then on I was transfered onto metformin tablets.These tablets carried me in good stead.I under went routine ultrasound scans on a yearly basis although as far back as april 2003 an undefinable mass was evident.the yeary monitoring showed growth in the mass,confirmed by CT scans and later MRI scans culminating in a diagnosis of primary liver cancer April 16 2007.I was very fit and active for a man of 59yrs,still participating in scuba diving at an advanced leve.I was as a result in shock and not least of all denial with a capital D!After a curtailed pre assesment and a few weeks of trying to carry on as normal and exploring alternative options to transplant. All to no avail and with a prognosis of 6 to 12 months or less if the tumor grew over 5cms. I returned to the Liver Transplant Unit at QE and cap in hand asked to return to the fold. Thankfully I was accepted back and ultimately placed onto the priority list. Within 3 weeks I was transplanted still fit and well! I couldn't believe how well it all went, five and a half hours later to wake up momentarily to see my wife and two daughters. After only 6 days I was allowed home! I am unable to express how thankfull I am to not only the surgeons and physicians but all of the other vital members of the liver team and nursing staff who were all extremely kind and supportive beyond belief! I am currently on basic levels of immuno-suppressents although experiencing some symptoms of kidney stress and low energy. Diabetic control is now via insulin injections but far less traumatic than I imagined. Now the winter is over I am looking forward to becoming much more active. To the family of the donor I extend my deepest sympathy for their tragic loss. and from my devoted family ETERNAL THANKS.
J.P. |
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20 Margaret Davies
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| Thursday 12/02/2010 18:31:54 CST |
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Sun 29 Mar 2009 13:54:30 BST
My husband has cirrosis of the liver caused through undiagnosed diabetes, asophagol varises and aneamia. He is 61 and waiting to be put on the liver transplant list. Would love to hear from people in similar curcumstance for and to give support. 19.2.2008
17:16 h |
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19 Margaret Davies
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| Thursday 12/02/2010 18:30:43 CST |
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Sun 29 Mar 2009 13:51:34 BST
Hi my husband Grahame is 61 with diabetes. We were told last Friday he would need a liver transplant. Liver damage caused through undiagnosed diabetes. Would love to hear from others of around same age and same illness as feel so alone at moment and numb. 11.2.2008
17:31 h |
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18 Michaela Weston
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| Thursday 12/02/2010 11:01:18 CST |
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Sun 29 Mar 2009 13:50:16 BST
Hi, I wrote to you in may 2007 just 14 days after my liver transplant, and i thought i would just let you alan and everybody else know that after 9 months things are great, the staff at Birmingham are truly amazing. i can only thank the donor for the greatest ever gift they could have given, life. I still don't know what happened to make my liver stop working and probably never will,but i just want to tell people who have any doubts about a transplant-it isn't easy but after a few weeks and now months it is DEFINATELY WORTH IT, god bless to all involved, Michaela xx 20.1.2008
18:51 h |
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17 Linda West
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| Thursday 12/02/2010 10:59:40 CST |
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Sun 29 Mar 2009 13:47:55 BST
My husband is awaiting a liver transplant. It is really good to see you looking so well now. Kind regards, Linda (West) 24.9.2007
17:15 h |
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16 Helen Probert
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| Thursday 12/02/2010 10:58:08 CST |
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Sun 29 Mar 2009 13:46:49 BST
Thanks for your wonderful website. I received a renal transplant 5 years ago, which transformed my life and got me off haemo-dialysis. I am now on the waiting list at Birmingham for a double transplant, liver and kidney. Just waiting for the phone to ring.......... 23.9.2007
5:21 h |
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